Friday, January 4, 2013

2012 Redux

Below are the symptoms I have had for over 18 months now.  These are the vast majority of symptoms for Celiac Disease.
  • Abdominal cramping, intestinal gas
  • Distention and bloating of the stomach
  • Chronic diarrhea or constipation (or both)
  • Anemia – unexplained, due to folic acid, B12 or iron deficiency (or all)
  • Unexplained weight loss with large appetite or weight gain
  • Dental enamel defects
  • Bone or joint pain
  • Fatigue, weakness and lack of energy
  • Depression
  • Mouth ulcers
  • Tingling or numbness in hands or feet
  • Migraine headaches

  • Celiac Disease can appear at any time in a person’s life. In adults, the disease can be triggered for the first time after surgery, viral infection, severe emotional stress, pregnancy or childbirth.

    When I was preggers with Missy, I had the worst bout of heartburn for several weeks before I finally got some medicine for it.  I kept thinking it would go away during those few weeks but it did not until I took medicine. 

    I have been a chronic Tums habit since I can remember. 

    I have always felt bloated and "fat".  Eating "issues" are not new for me.  In grad school, I started taking diuretics.  A lot of them.

    I have lost so much hair I am surprised I still have hair on my head!  Crazy.

    After Missy was born and I was overweight and out of shape I just assumed I felt bad because I was overweight and out of shape.

    I have abused my body for many years eating poorly, drinking too much, and either over exercising (four hours a day!) or allowing myself to get heavier by overeating unhealthy foods.

    The fall of 2011 I got so sick for months and months with multiple viruses. One of which got me so sick I passed out in the shower.

    The year before that in 2010 I had such had inflammation in my joints (hips and wrists) I thought I had arthritis. Prior to that I had a neck issues that took me years to resolve and I could barely exercise without it hurting.

    I have had migraines, or as I have referred to them over the years, snarly headaches forever.

    I have suffered from depression from my teen years on.

    I have more cavities then I have teeth... oh ho ho.  I mean seriously. I am set right not to spend $3k on my teeth and that is just the right side of my mouth. I have a feeling when it is all said and done I will have spend well into the $6k range.

    I have worked for a very difficult person in the most heinous job.  I have done it because of the money for almost a decade and I feel like I am now paying the price for that.

    I feel like the past year and a half at my job I have suffered intense emotional stress. I have had massive panic attacks and intense depression that I mostly had under control until things started to change at my job.  I think that if I were to pin point a severe emotional stress it would be how much I have suffered through my work.  I doubt it is worth my health any more.  I am terrified right now.  I am terrified that forever I will have to change my diet because of this.  I am terrified of all the bad things that could be happening inside me to make me feel so sickly all of the time.  I just want to feel better.  I am trying to hang on to things.  Like I am seeing the GI doc in four days.  Like I have the root canal in one month.  Like I went to the grocery today and bought a pile of items to assist with starting the process of changing my diet over from whatever it is now to something "better". 

    And I probably need to find a new job... Oh 2013 you are not starting out as I had hoped. 

    2 comments:

    Julie Julie Bo Boolie said...

    I know it can be very scary to change your whole diet but there are so many more gluten free products on the market than there were even just 5 years ago. Also many restaurants are now catering to celiac's patrons so your life will still be liveable.

    It'll be a huge change with challenges for sure, but take heart in the fact that with so many other people suffering as you do, there are many more resources available to you than you think.

    Good luck!

    Rolling Off The Edge... Together said...

    Thank you! I did get to the library yesterday in hopes of finding some books. All the one's I wanted were out of course but I did end up with one. I have been doing a lot of homework online too. I get the sense that the worst part about this will be giving up BREAD and BEER which of course I love and are items I have always enjoyed but on looking at things it is not so bad. The worst part is the fact that I have a sensitivity to eggs so I am trying out the eggs whites. The yolks were the part of the egg I had the most trouble with. I am hoping the GI doc can give me solid answers because my teeth are killing me today :( Anyway, it is good to know there is support out there and that I am not alone :)!